The Charity Film Awards (en)
  • Sally Phillips

Twinkle Twinkle Little Heart

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With help from heart hero Billy, and his heartbeat, the Christmas lights in London's Seven Dials pulsed in time to Billy’s heartbeat for 24 hours in the lead up to Christmas 2018, to help shine a light on the plight of babies and children who miss Christmas due to serious heart conditions.

312 UK babies with a serious heart condition are born over the Christmas period – and 1,000 babies leave hospitals in the UK every year with an undetected heart condition.

Our aim was to highlight that whilst everyone else is admiring the Christmas lights, many babies and young children face a very different Christmas; in hospital waiting for, or recovering from, open heart surgery

Young Billy was diagnosed with Transposition of the Great Arteries (TGA) at his mum’s 20 week scan. TGA is a condition where the two main blood vessels leaving the heart are swapped over and affects 1 in 10,000 babies. After a traumatic 13-hour operation at just 7 days old, Billy has come on in leaps and bounds and is now a bouncy 3 year old.

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