The Charity Film Awards (en)
  • Audience

Saving lives – how genetics research changed the future for people with aHUS


This film captures the impact genetic research has had on the lives of people with aHUS - a rare kidney condition. It tells the story of Ros, who thanks to research, received life-saving treatment when her disease triggered and she arrived at hospital with kidney failure. Her story is very different from her aunt, who died at the young age of 39.

Back in the 1990s, our scientists played a crucial role in finding the genes underpinning this condition. This vital work gave clues to how to treat it, and the research moved from the lab bench to making a real difference to patients in the clinic.

And as a charity, our story continues - thanks to our generous supporters we are still hunting for ways to help more people with genetic kidney disease.



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