MEN2B and ME: Ethan (his own words)
In 2019, AMEND commissioned three short films following three different people to highlight the issues of late diagnosis and the benefits of early diagnosis in the rare, genetic syndrome, Multiple Endocrine Neoplasia Type 2B (MEN2B). Young Ethan had medical problems from birth but was not diagnosed with the rare, genetic syndrome, MEN2B until he was 12 years old. The optimal age for diagnosis and treatment is under 1 year old. We meet Ethan a year after his diagnosis when he and his family are learning to live with the consequences of that late diagnosis: incurable, metastatic medullary thyroid cancer. Meet this inspiring young man who tells us in his own words how he deals with living with a rare and incurable cancer.
More videos from Association for Multiple Endocrine Neoplasia Disorders (AMEND)
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