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I was diagnosed with a condition called Mast Cell Activation Syndrome in 2013. I had gone from a healthy sporty family focused father to suffering disabling episodes of abdominal pain in a few months. I was losing my mind and withdrew into a dark world of absolute desperation. I was lucky I found a doctor interested in my condition and determined to figure it out, working across the medical disciplines. This disease produces unusual multi system symptoms that do not fit standard patterns. It confounds the medical system and people spend decades going round in circles. I hope to raise awareness of the condition, the plight that most patients needlessly suffer and the opportunity to greatly improve things if a more holistic diagnostic process was considered.
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